By William Moncrieff, Communications Apprentice
Disability Pride Month 2024 is taking place throughout the month of July. This month is an opportunity for individuals with a disability to have a chance to come together and tell their stories. Disability Pride Month is about a lot more than showcasing what having a disability means. It is an opportunity to showcase the day-to-day struggles, achievements, bouts of resilience and life changing experiences that individuals with a disability often have. With one quarter of the Scottish population having a disability, Scottish Disability Sport view it as being paramount that there is accurate representation throughout staff and the Young Person’s Sport Panel (YPSP).
The Disability Pride Month flag is made up of different colours that represent a different disability. Yellow is being used to celebrate neurodiversity, cognitive and intellectual disabilities.
Yellow represents both Ruby and Grace, two members of the YPSP, and here they share a bit about themselves.
Ruby: Hi my name is Ruby. I am 17 years old, and I have Foetal Alcohol Syndrome which is also known as FASD. This means I have a learning/hidden disability. I joined the Young Person’s Sports Panel to show people that they shouldn’t be ashamed of having a disability. It makes you unique and different to everyone else. I would like to help make a difference, not just in disability sport but in the wider community. My disability impacts my life with my reading and writing and understanding. I sometimes need help and support. The most exciting thing that my disability has done for me is allowed me to be me. I am a very sociable person and like helping people. I do lots of volunteer work, which allows me to help people of all abilities. I have won lots of awards for this and had the opportunity to meet lots of my sporting idols.
Grace: Happy Disability Pride Month! My name is Grace, and I am going to be talking a little bit about my experiences as a disabled young person. I have autism, a neurodevelopmental condition (also referred to as neurodivergence) which means that my brain works differently. It impacts most of my life, and I struggle with: emotional regulation, processing information, sensory issues, anxiety around uncertainty and social situations.
As an autistic person, I mask a lot. Masking is when a person attempts to hide their autistic traits, to fit in or be more accepted by society. This means that from an outside perspective it might not look like my disability impacts me in day-to-day life – but it does. The main ways my disability impacts me in day-to-day life is by needing a lot of support from people to help manage my emotions and learn to be independent. I also get really tired a lot of the time. Because I spend a lot of my time masking, feeling anxious, or getting overwhelmed by everything going on around me, I get drained pretty easily – so I need a lot of time to rest and recuperate.
I wasn’t diagnosed with autism until I was 16. This means that I spent most of my teenage years thinking something was “wrong” with me, or that I wasn’t “trying hard enough.” Getting my autism diagnosis brought up a lot of emotions – relief, confusion, anger – and it was a lot to get my head around. I had to show resilience when dealing with my diagnosis and working to accept my autism. It was hard to cope with all the things that changed after my diagnosis, however it also allowed me to advocate for myself. Whilst autism is a disability – one that can make my life harder – it is also something I am proud of. Autism makes me who I am, and I take pride in my identity.
I wanted to join the YPSP because I knew how positive sport has been in my life. I wanted to promote inclusion in sport for autistic people, and I am also passionate about equality for women and girls in sport. I have been successful in this so far by being a part of the “awareness raising” subgroup and posting of social media throughout “women and girls in sport” month. I have really enjoyed my time on the panel so far, and I can’t wait to see what’s to come!
Red represents physical disabilities.
Charlotte (YPSP member): Hey, my name is Charlotte and I am 18! My disability is Complex Regional Pain Syndrome and Functional Neurological Disorder. This basically means that my brain is not communicating with my right leg and I have pain in my right hip and my leg is extended out in front with my foot at a 90° angle.
I am part of the events subgroup (in the YPSP), and we are in the process of planning our own event! I joined the panel to have a voice in disability sport and start my coaching career as having a disability was quite new to me. I am a wheelchair user with my right leg supported out. Having my disability can impact my day-to-day life, as if I am going out coaching and my parents aren’t around to help drop me off it means I need to get lifts off people, as public transport is not that accessible for me! I find ways around this by planning my day so I am in one area all day and can wheel from building to building for coaching!
I became disabled 3 years ago and did not have a clue what to do with myself! But since then I have had lots of new and exciting opportunities. For example, going to Lords cricket ground, in London, with my old high school to take part in a table cricket final! I also have become a valued member of FVDS supporting clubs, activities and events. I have also joined the committee as the social media/comms rep, and I’m looking forward to getting stuck in and promoting all the wonderful events and activities on social media! Becoming Young Volunteer of the Year 2023 was such a great surprise. Working with Cricket Scotland and Cricket Forth Valley to develop myself as a coach and gain qualifications to become a cricket coach has allowed me to teach others table cricket and help them on their journey. Volunteering with Falkirk Active Schools supporting lunch time and after school clubs and events has been a great opportunity, as has Helping Falkirk Active Schools and Active Stirling with summers camps and developing relationships with the children. Just gaining valuable skills and knowledge to become a better coach and help others enjoy sport has been great. I have had the privilege of attending SDS events and supporting the amazing team and getting stuck in wherever I am needed to help the event become a success. These opportunities have also created lasting memories and friendships with people I volunteer, support and coach with. I recently qualified as a Sport Education Tutor thanks to an opportunity through the panel and I’m looking forward to starting this and helping others achieve their goals and potential.
Green represents sensory disabilities –
William (SDS Communications Apprentice): Hello, my name is William and I am the communications apprentice here at Scottish Disability Sport. I became completely blind as well as deaf in my right ear when I was 19. This happened after a sudden illness. At times being Visually Impaired can be very hard. I especially find this to be the case when focusing on my independence. Due to myself being completely able bodied before I lost my sight and hearing this has a been a big change in my life. Before I lost my sight I played a lot of sport, did a lot of recreational activities by myself and could drive. Obviously I took some time to adjust, which I am still doing. However, I feel like I have made big improvements. I feel like I am a lot more comfortable asking for help and more importantly taking it. In life people are always wanting to help, but people aren’t always wanting to be helped, and this is something I am working on.
One really exciting thing that has happened to me is joining the Millimeters to Mountains organisation (M2M). This organisation takes young people with a disability – particular individuals that have picked up their disability in later life and aims to use the outdoors as an opportunity to redefine what is possible in life. This has led to me having some really cool opportunities, such as climbing Ben Nevis in March. This was something that was great for me, putting me out of my comfort zone and forcing me to interact with new individuals that I could relate to. Over the next two and a half years I am going to have some great opportunities with the M2M crew, which I can’t wait to explore, develop and share.
White represents hidden and undiagnosed disabilities –
Dana (YSPS member): Hi, my name is Dana! I have hypermobile Ehlers-Danlos syndrome (hEDS) and fibromyalgia, both of which are chronic health conditions. hEDS is a connective tissue disorder caused by faulty collagen, making it weak and stretchy. This affects everything from my skin and tendons to my blood vessels and internal organs. As a result, I experience things like chronic pain and fatigue, frequent joint subluxations/dislocations, easy bruising, digestive issues, and chronic headaches/migraines. Fibromyalgia is characterized by widespread pain, fatigue, and cognitive difficulties.
I joined the panel to be a voice for change. Having been heavily involved in sports my whole life, I have gained firsthand experience of the benefits of physical activity and sports whilst also encountering many barriers to participation. Until last year, I knew very little about disability sports and how to get involved. Joining the YPSP has given me the chance to be part of a subgroup where we aim to raise the profile of disability sports and shine a light on the many opportunities and experiences that exist in Scotland for disabled people.
Living with hEDS takes a lot of planning and prioritizing. Everything takes up energy, so adapting my daily routine and having a support system is essential for me to maintain independence and have a life. Having an invisible disability also means I constantly have to advocate for myself and the support I may need. The lack of understanding about dynamic disabilities can cause a lot of anxiety. While it may seem confusing that yesterday I could walk and today I need a wheelchair, it is merely just because my needs have changed.
I grew up as a competitive swimmer with the dream of reaching the Olympics. When my health deteriorated and the injuries piled up, doctors advised me to reduce training and stop competing. This shift in my daily routine had a massive impact on my mental health and I struggled to adjust to a new normal. With some support and advice, I realized this wasn’t the only option. I worked hard to get into university to stay connected to sports through my degree. I then used my passion for inclusion in my dissertation and I now use my experiences to support and advocate for others. Whilst having an unpredictable illness can make life challenging, it is important to try and see lost goals as new opportunities.
The colour blue represents mental and psychiatric disabilities –
Former Paralympian, Maria Lyle, has opened upabout her mental health journey as an elite athlete, over recent years.
Maria has found sport to be something that has helped her have a more positive relationship with her mental health. “Something that sport has provided is that kind of social support. Being a disabled person, I’m not always around other people who I can relate to, so having people in my team with the same condition, or with other disabilities means we can share experiences and advice and really open up, which has been brilliant”, said Maria in a previous SDS interview.
The social aspect of sport is a big part for many individuals participating in sport. A further coping mechanism for Maria is, “making sure I’ve balance in my life. Putting energy into other hobbies, education, work and friends. So when say if one thing isn’t going the way you want it to then you’ve got other options to make everything else more positive.”
Although Disability Pride Month only takes place in July, it is important that we advocate for inclusion and continue these conversations every day. With 722 charges being reported with an aggravation of prejudice relating to disabilities in 2022-2023, (a 3% increase from 2021-2022) this very much outlines the need for more awareness to breakdown societal barriers. (Source: https://www.copfs.gov.uk/publications/hate-crime-in-scotland-2022-23/.)
SDS celebrates and advocates for a more inclusive and diverse society, every day, and SDS will be joining in the nationwide celebration of Scottish Disability Sport Week (SDSW) from Monday 25th November to Sunday 1st December – just ahead of International Day of Persons with a Disability on the 3rd. Scottish Disability Sport Week will be a prime opportunity for individuals to join conversations and talk about challenges and achievements of individuals with a disability. More information about the 2024 SDSW will be coming soon, via the SDS website and social media channels.